For a while now I have been following the Vlogbrothers on Youtube. John and Hank Green send each other videos of under 4 minutes (if not they will punish each other!) in which they talk about the nerdy things in life. They are highly entertaining and have a great following.
So this Link Love Friday is not about them.
It's about Samantha aka MakupCrazyArtist, a 13 year old girl who posted ta video response to them. She suffers from a rare skincondition called EB (Epidermolysis bullosa) which causes the skin to blister, tear and even fall off at the slightest touch. Blisters can also form in the mouth and throat, making it difficult to eat, drink and even breathe.
Samantha talks about how difficult it is to be in pain, how it's so easy to take things for granted like being able to pick up your iPhone but how she can't do that because she can hardly bend her fingers anymore. If she doesn't wear special gloves, her skin disease can cause webbing.
All she wants is to do is tell people about this disease and hopes that some day, there will be a cure.
Here is Samantha's video, but please watch it on Youtube so you can see all the links to other sites as well:
Let's hope that cure is on its way!